Please include your own name and phone number, then email your submission to Ronnie Polaneczky at [email protected] the subject line “Invisible No More.” Submissions may be edited for brevity and/or clarity and may also run in the Inquirer and Daily News to Mozart.
He speaks, reads and writes in English and Korean and is studying Italian to sing opera better.
” Age: 56 Diagnosis: Intellectual disability, nonverbal Lives in: Chestnut Hill About Graynle: “Graynle loves people, and he loves pretty ladies,” laughs his mother, Verna.
He wants to know how his favorite teams played, what the weather is like and what’s going on around him; no negative or scary news, please.” Hopes and fears: “My biggest hope is that Chet’s life will be shared with a community of people that want him to be a part of their lives.
Because he is nonverbal and medically fragile, my biggest fear is that he will outlive me and be cared for by people who do not know him and will not be able to to assess his needs and wants.” Age: 22 Diagnosis: Down syndrome Lives in: Wayne About Wendy: “Wendy is a Radnor High School alum and their biggest team fan,” says her dad, Joseph Romano.
Reader response has been so overwhelming that families with disabled loved ones have said of the series, “We’re no longer invisible.” The mission of “Invisible No More” is to keep that momentum going.
Tell us about your disabled loved one: name, age, the nature of his or her disability, where they live, a short bio, and your hopes and fears for them.
He has a glowing personality, and an inexplicable way of making everyone feel better, almost like giving everyone the hope that somehow he’ll make this world a better place for many people.” Hopes and fears: “For some people with disabilities, when their parents die they’re left with siblings who don’t even know what diagnosis they have.
My husband and I want to make sure that never happens so we have both Alex and his sister [Isabelle, 12] take part in our advocacy work for people with disabilities.
He’s a very happy guy and truly delightful company.” Hopes and fears: “I hope Graynle will always be happy and healthy – he is prediabetic and has asthma. He has overcome the obstacle of having his fingernails trimmed.
My fear is that his dad and I will leave this world before Graynle does, or that the situation we work out for him won’t end up being right for him.” TV guide,” says R. “It is his security blanket from both tactile and schedule perspectives. I began taking him to a local nail salon and now he knows the drill.
He loves sports – his father takes him to basketball and football games – and he loved seeing the Mummers Parade on New Year’s Day.
He loves to dance and he will listen to anything, but his favorite is jazz.
” Age: 26 Diagnosis: Significant intellectual disabilities, seizures Lives in: Philadelphia About Katie: “For Katie, it’s always been about connecting with people at the most fundamental level,” says her mother, Kathy Roberson.